Privacy policy

• How your personal information is collected and processed. Personal information is any information that can identify you. This includes your first and last name, your email address, or your IP address;
• Your rights with respect to this information;
• The controller of the personal information collected;
• The third parties to whom this information is transmitted;
• The site’s policy regarding cookies.

The website does not collect any personal information.

• If you use the contact form, your email address and the content of your email will be forwarded to a project-specific email address at McGill University. We advise you to not share important and sensitive information via the contact form.

All personal information that we collect for the MPN project is described in the consent forms that you will receive prior to enrolment in our study. All other non-personal information are described in“Forms and methods of collection” and “Log files and cookies” sections.

Your personal information (Name, date of birth) is collected through the following methods:

1. Consent forms (Hosted on a secure server at Research Institute McGill University Health Centre)

2. Enrollment forms (Hosted on a secure server at Research Institute McGill University Health Centre)

The information thus collected is used for the following purposes:

• Contacting you to schedule your visits
• Informing you of incidental findings
• Compliance with research ethics regulations
• Remuneration of your time, if applicable.

Google Captcha protection:

All forms on the https://open-mpn.biobank.mcgill.ca website are protected by Google’s reCaptcha service. To learn more about this service, please consult Google’s privacy policy and terms of use.

We may collect certain information through log files and cookies. These files allow us to process statistics and traffic information, facilitate navigation and improve the service for your convenience.

A. Description of cookies used by the site

This mainly concerns the following information:

• IP address
• Operating system
• Device type and model
• Device screen resolution
• Browser type and language
• Region or municipality, determined from IP address
• Point of origin (e.g. banner, e-mail, social network, etc.)
• Pages consulted on the site

The use of such files allows us to achieve the following objectives:

• Statistical studies

B. Opposition to the use of cookies by the site

You can oppose the recording of these cookies by configuring your browser software or by personalizing the consent banner at the bottom of the site.

If you decide to disable cookies, you can then continue browsing the site. However, any site malfunction caused by this manipulation cannot be considered as being our fault.

We agree not to sell to third parties or generally market the personal information collected. However, we may share this information, only if you have indicated on the consent form to be contacted for the following reasons:

• Receive newsletters from our research team
• Partners : If an individual has consented to receive information from other researchers to participate in future biobanking studies by checking the corresponding box in a form.

If you do not want your personal information to be shared with these third parties, you can object at the time of providing informed consent or at any time thereafter, as mentioned in the “Right of opposition and withdrawal” section.

Advertising and remarketing

To create advertisements about our study, Montreal Paris NEUROBANK may use Google AdWords and Facebook Ads tools. When the information provided by this service is used for  Montreal Paris NEUROBANK’s recruitment purposes, it is protected under this Policy. However, Google AdWords and Facebook Ads may collect data for their own use. In such cases, your information is collected, used, and protected according to their respective policies: Facebook Privacy Policy – Google Privacy Policy.

The person responsible for processing personal information will keep all the personal information collected in the site’s computer systems and under reasonable security conditions for a period of four years.

Our website may offer you links to other sites or services that are owned and operated by third parties. These sites are not affiliated with our organization. Please understand that the websites linked on our site are independent and may also collect your personal information or cookies. We cannot be held responsible for how these third parties collect, use, or disclose your personal information, nor can we guarantee or make any representations regarding the accuracy, timeliness, or completeness of the information contained on these external websites.

Our site is hosted by McConnell Brain Imaging Centre at Montreal Neurological Institute, whose office is located at the following address:

3801 University street,
Montreal, QC
H3A 2B4

The host can be contacted at the following telephone number: 514-398-8515

The information provided in the contact form will be processed in McConnell brain Imaging Centre, in Quebec/Canada.

A. The person responsible for processing personal information

The personal information controller at McConnell Brain Imaging Centre is The Research Program Officer and Scientific Directors. The person responsible can be contacted by email at  montreal-paris-neurobank@mcgill.ca or by phone at 514-398-8515.

The person responsible for processing personal information is responsible for determining the purposes and means used to process personal information.

B. Obligations of the person responsible for processing personal information

The person responsible for processing personal information undertakes to protect the personal information collected, not to transmit it to third parties without your having been informed and to respect the purposes for which this information was collected.

In addition, the person responsible for processing personal information undertakes to notify you in the event of rectification or deletion of personal information, unless this entails disproportionate formalities, costs, or procedures for them.

If the integrity, confidentiality, or security of your personal information is compromised, the controller undertakes to inform you by any means.

You have the right to object to the processing of your personal information by the site (“right to object”). You also have the right to request that your personal information no longer appear, for example, in a mailing list (“right of withdrawal”). To object to the processing of your personal information or to request the removal of your personal information, you must write to the address montreal-paris-neurobank@mcgill.ca to make the request.

Your rights to read, update, or modify information concerning you, or request its deletion, by following the procedure set out in the Information and Consent Form.

The personal information we collect is kept in a secure environment. People working for us are required to respect the confidentiality of your information.

To ensure the security of your personal information, we use the following measures:

• SSL (Secure Sockets Layer) protocol
• Access management – ​​data subject
• Username and password
• Firewalls

We are committed to maintaining a high degree of confidentiality by integrating the latest technological innovations to ensure the confidentiality of your information. However, as no mechanism offers maximum security, some risk is always present when using the Internet to transmit personal information.

This privacy policy may be consulted at any time at the address indicated below: https://open-mpn.biobank.mcgill.ca/privacy-policy.

We reserve the right to modify it to guarantee its conformity with the law in force.

Therefore, you are invited to consult this privacy policy regularly to keep yourself informed of the latest changes that will be made to it.